Good news, everybody!
After months of sometimes frustrating work, the contract is signed and the announcement has been made to the families.
The Ninth Biennial Aicardi Syndrome Family Conference will be held the weekend of July 11-13, 2008 at the Pheasant Run Resort & Spa in St. Charles, IL.
http://www.pheasantrun.com/
The Aicardi Syndrome Foundation is paying for two nights of hotel stay for each family who has an Aicardi child. They are also paying for two dinner buffets and two breakfast buffets. There will be dozens of speakers on every aspect of our children’s lives. We should have about 90 families there.
I also now have a Co-chairperson. This is a great relief as I was getting a little stressed from the workload.
All of our Illinois friends are officially on volunteer notice. :)
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